Living with terminal illness

Funding medical bills

The out-of-pocket costs of a serious illness can be significant and often come as a surprise. Understanding your options, asking the right questions, and knowing what financial support is available can make a real difference.

Reviewed by Pierre Legrand, founder of 18December
Published 12 June 2026
General information only. This guide is not medical, legal, or financial advice and does not create a professional relationship. Laws and medical standards vary by state and territory. Always seek advice from a qualified professional for your specific circumstances.

What should I check in my private health insurance?

If you have private health insurance, now is the time to understand exactly what your policy covers. Call your insurer and ask for a specific review of coverage for: hospital admissions, specialist consultations, day oncology or treatment unit visits, radiation therapy, surgery, medical equipment, and ambulance transport.

Ask your insurer specifically about the "no gap" or "known gap" arrangements with your specialists and hospitals. Many insurers have agreements with participating specialists that reduce or eliminate out-of-pocket costs for their members. Ask whether your specialist and hospital are participants.

If you do not have private health insurance and are considering taking it out, be aware that hospital cover has a 12-month waiting period for pre-existing conditions. For someone already diagnosed, private health insurance will not cover costs related to the existing diagnosis during the waiting period.


How does Medicare and the Extended Medicare Safety Net help?

Medicare covers a portion of the cost of most medical services in Australia. For services rendered in the public system, Medicare typically covers the full cost. For private services, Medicare covers a percentage (usually 75-85% of the MBS schedule fee), and the gap between the schedule fee and what the specialist charges is your out-of-pocket cost.

The Extended Medicare Safety Net (EMSN) provides additional protection once your out-of-pocket Medicare costs exceed a threshold for the calendar year. After you reach the threshold, Medicare covers 80% of any further out-of-pocket costs for out-of-hospital services. The threshold resets each January. Check your current EMSN balance through myGov.

For families managing multiple specialist visits across the year, the EMSN threshold is often reached by the middle of the year, after which ongoing costs reduce significantly.


Can a hospital financial counsellor help me?

Most major Australian hospitals have a patient financial counsellor or social worker who can help with the financial aspects of hospital care. They can review your eligibility for concessions, help navigate hospital billing, and connect you with financial assistance programs.

If you are facing significant hospital bills or are concerned about meeting costs, ask to speak with the hospital's patient accounts or social work department. Do this proactively, not after bills have accumulated. Hospitals generally prefer to resolve financial concerns early and have more options to help before debt becomes significant.


Can a clinical trial reduce my out-of-pocket costs?

Participation in a clinical trial can provide access to treatments not yet commercially available, often at no cost to the participant. Some trials also cover or reimburse associated costs such as transport and accommodation.

Not everyone is eligible for a clinical trial, and participation involves its own considerations. Ask your treating specialist whether there are relevant trials for your diagnosis. The Australian Clinical Trials website at australianclinicaltrials.gov.au lists trials currently seeking participants by condition and location.


Are there disease-specific financial assistance programs I can access?

Many disease-specific organisations provide financial assistance to people with serious illnesses. This may include grants for medical expenses, funded counselling, subsidised equipment, or direct financial aid.

Search for the organisation most relevant to the diagnosis and look for financial assistance programs on their website. A hospital social worker can also connect you with relevant programs for your specific situation.


What is the No Interest Loans Scheme?

The No Interest Loans Scheme provides interest-free loans of up to $2,000 to low-income Australians for essential goods and services, including medical expenses. Loans are repaid in small instalments with no interest and no fees.

To be eligible, you need to hold a Health Care Card or Pension Concession Card, or be on a low income. Apply through Good Shepherd at nils.com.au or call 13 64 57.


Can I negotiate with my specialist about fees?

Many specialists will reduce their fees or agree to a payment plan for patients experiencing financial hardship. This is not widely advertised, but it is common. You can ask the specialist directly, or ask their receptionist or billing coordinator whether a reduced fee or payment plan is available given your circumstances.

If you have the option to choose between multiple specialists, ask about their fee structure when booking. A specialist who bulk bills or who has a known gap arrangement with your insurer may cost significantly less for the same level of care.


Why do I need to keep records of all my medical expenses?

Keep receipts and records for all medical expenses. Some costs may be claimable as medical expenses in your tax return (depending on changes to Australian tax law), and clear records will also be useful if you are applying for any financial assistance programs or insurance claims.

Many banks and health funds provide online summaries of medical spending that can help track the overall picture. If you are approaching insurance or financial assistance applications, having a clear summary of actual costs to date strengthens your case.

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Pierre Legrand
Founder, 18December

Pierre started 18December after his partner Mark was given a terminal diagnosis, when they mapped out everything that needed to happen at the kitchen table. He reviews the guides to keep them honest, plain, and genuinely useful. About 18December

Published 12 June 2026

Read the latest version of this guide at www.18december.com.au/guides/funding-medical-bills

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